May 16, 2022

 Hello to all- just a monthly update. Time has been going by quickly and uneventfully, so that is great news. Aurelia has returned to school full-time (9am-5pm) and is doing very well. She does experience the occasional day when she calls me feeling a bit fatigued and wants to go home, but for the most part she feels pretty good. 

During the first months of the maintenance phase of treatment the doctors often change the amount of chemotherapy she has each week, so we have had a few ups and downs with joint pain and headaches. We find that fresh air seems to help, so we take slow walks or get out on her e-bike and it helps her pain. It’s also warm enough to swim now, so she has been swimming in our pool each day after school. 

This has all become our new normal and we are doing our very best to live a regular and full life…while dragging around a cooler of medication and chemotherapy. Our weekends are as they always were—busy with sport and time with friends. The importance of these simple things are not lost on us and we are continually grateful to be moving forward toward the end of treatment.

It has nearly been a year since Aurelia’s diagnosis. She has decided being upset or spending too much time thinking about it is not the best idea, but she wants to have a party to celebrate all the good things. We have learned that we never know what tomorrow will bring, so we will definitely be having a small party to celebrate life.

Aurelia and I at the Temps de Flors festival in Girona:








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