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Showing posts from October, 2021

October 20, 2021

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  We are back at the hospital for in-patient (2 of 4) of this current phase. Aurelia and I left Girona yesterday at 6am and had a pretty calm day yesterday. Blood work, doctor visit, chemo, school work, Zumba videos for exercise, and some Netflix before bed. We are even in a room that has two actual beds!! Most of the rooms have a bed for her and a chair/couch thing that parents sleep on, so sleeping on a true bed last night felt luxurious.  During these four hospital days Aurelia receives a high dose of methotrexate and this chemo is pretty intense, so she has to stay in the hospital for four days to make sure her body is excreting everything. Aurelia thinks it is hilarious that her urine is fluorescent yellow. 🤦🏻‍♀️ We have to make sure she uses the bathroom every couple of hours and they take samples to make sure it’s leaving her body. I guess the side effects can be pretty ínstense, but Aurelia didn’t have any issues last time so I hope she is okay this time.  I hav...

October 7, 2021

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Aurelia has started her next phase of treatment and we have been at the hospital since Tuesday. On that morning she was put under general anesthesia so they could do a chemo treatment to her spine—a very common treatment for kids with leukemia. She did really well and was able to receive her other chemo treatment later that afternoon. .  On Wednesday she had chemotherapy again and was quite tired, so she napped and then we tried to finish a few school assignments. Her body just wanted rest, so after some school work we spent the afternoon watching real estate shows (her favorite).  The therapy she is having is very strong and last night we had to do urine samples every couple of hours to be sure her body is excreting everything properly. Neither one of us slept well, but she is feeling less fatigued this morning and is on a video call with her teacher at school. The doctors are really pleased with her progress and everyone is very curious about her hair. When she began treatme...